Sunday, June 16, 2013

Living joyfully with NF1

A lot has happened since our last update on Tito Jr.

We are grateful to Make-A-Wish for granting our son Tito a wish. In February we enjoyed a Western Caribbean Cruise aboard the Liberty of the Seas ship with Shrek, Princess Fiona, Alex the Lion, and many more DreamWorks characters.

Tito Jr. has had a stable stretch with neurofibromatosis type 1. Though he lives with the effects of this incurable tumor condition, he lives fearless. Now four years old, Tito makes sad kids laugh by dancing silly or making funny faces. He sits with buddies who are in time out. Though it's tough to hear him sing from his bed at 5:30 a.m., I can only smile.

And I've learned to laugh by accepting life as is. With a load of laundry on one hip and the phone up to my ear talking to specialists, requesting medical records, planning another medical trip, this is my life. And I accept it, this joyful life with my precious son.

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