We had baby Tito back to Seattle Children's last week. Again, nothing but praise for this place. If there is any pocket of heaven on earth, you can find it at Seattle Children's.
The baby had a MRI of his spinal cord to check for tumors related to NF1. The results have yet to come back to us. One of the baby's surgeons ordered the MRI as part of the surgical plan set for this spring. If tumors are present, it would change the way the baby is intubated (gets air) during the surgery.
The visit to the Genetics Clinic at Seattle Children's, after the MRI, was informative. There is no way of determining how the NF1 will play out in Tito's life. The good thing is that his numerous brown spots will never turn malignant.
Another update will be given once we here the results from last week's MRI. We move forward towards surgery, trusting in God who goes before us in all things.